- Lord, you know how small and weak my faith is. You know how afraid I am . I am so grateful that your actions toward us , toward Shepherd, are not based on the amount of faith I can muster up. Please help me not to muster. I know I don't have to be a strong mommy. I can be a fearful mommy and you will still be just as near, nearer. And that I ask of you, that I beg of you. Please show me your nearness so brilliantly that I can face tomorrow confidently. Please remind me that you, who hold each star in place every moment of every day will be there in that cath lab holding my son.
- Please pray. The doctor just came to get us to tell us that they will need to do the surgery. Not only that but it's in a much more dangerous area than they expected and the risk is much greater than before. If the aorta tears, he will not survive it. Please pray that God will hold his aorta together and protect him.
Then, hours later, this post
They just came out to tell us he made it through the surgery. Thank you Lord, for bringing our son through one more surgery safely. You are to be praised. The doc said that it was mildly successful. The part that they stretched out can act like a rubber band and tighten back down, though. Please pray that the same hands that hold the water in it's place will hold his aorta open. The hope is that this will buy him time to get strong (3-6 months). At that time, they will have to do open heart surgery because of the location of the narrowing and how large an area it is. Please pray that the next few months he can recover well and gain weight to prepare him well for the next BIG surgery.We'll get to see him soon. Thank you for praying.
Well, God answered these prayers.
At his last appointment, they noticed significant growth for Shepherd's heart, specifically the narrowed portion that they ballooned during the cath. So... it is growing with him. This is, BY Far, the best case scenario for this situation. So much so that they didn't schedule our next appointment for 2 more months and thought I don't place my hope in it, they used phrases like "If things keep going this way, I'm hopefully he'll never need anything done to his heart."
Good stuff. God stuff.
Airway wise, we'll try de-canulation again May 06, 2010. I'll share more of my thoughts on this in the next novel/post. For right now, were just living in a cave, eating healthy, being proactive about everyones health and trying to keep Shepherd from illness. He has acquired 2 cold viruses so far and 2 trach infections but has done relatively well with both. It is very high maintenance but we have kept him out of the hospital. Praise be to God.
In other news........
Warning: when you attempt to look at your dragon's tongue, you may go cross-eyed
and your mom may take advantage of the situation-
by using her new camera.